Author Topic: Cystic Fibrosis  (Read 1073 times)

Offline MommyWonders

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Cystic Fibrosis
« on: Oct 17, 2013 @ 03:20 PM »
Hey! I see there's aren't a lit of posts here, so I thought I would introduce myself and my son Stink- he has Cystic Fibrosis. CF is the most common fatal genetic disease affecting Canadian young adult and children. It's affects mainly (but not only) the respiratory and digestive systems, as well as the liver.  My son is one of only three people in our territory who are affected with this 'invisible disease' and as a single working mama I am working tirelessly to keep him healthy and happy, as well as raising awareness and money herein the Yukon!
http://amylabonte.blogspot.ca/2012/11/timeless-thoughts-of-winter-stare.html



Offline Multiplying Memories

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Re: Cystic Fibrosis
« Reply #1 on: Apr 21, 2016 @ 05:40 AM »
I'm surprised that nobody else has posted here. I am also a mother whose son has CF. He is one of a twin, and I also have a 3 y/o. I have a lot on my plate to say the least. Plus I'm blogging and my husband wants me to home school my daughter. (I told him to wait for that one until she is older)

I took the opportunity to comment on your blog post. I would love to feature you on my blog as well as any advice you have for other moms of kids with CF.

Anyway, I just wanted to let you know I was here, for support in any way I can. I'm new to this myself and need any advice you may have. My son is only 4 months old and we have already been to the hospital twice. Once for RSV and another time for bronchiolitis.

 


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