Recent News

• What I’m Into {June 2018 Edition}
  What I am watching When season 1 of 13 Reasons Why dropped on Netflix last year I wasn’t interested in watching it at all. Let’s face it, it has been a LONG time since I was in High School, and little by little, year after year, movies or shows that depict teenagers’ lives are less and less relevant nor interesting to me. Then on a talk show one of the actors that portrays a parent of these kids started explainingRead More →
  Wednesday 13th of June 2018 04:08:19 PM
• Mental Fatigue
  Two years ago Nicky started a clinical trial at Stanford with a cream called “Zorblisa” that helped his wounds heal quite a bit. This is not a cure, of course, but getting wounds not only healed but healed WELL is always paramount to ensure optimal health. No wounds = no infections and no cancer, which are the deadly complications of RDEB.  For us, preventing wounds to begin with became a quest. While we cannot claim this as a miracle cream orRead More →
  Tuesday 12th of June 2018 01:51:52 PM
• Zuppa Toscana
  This is also an Italian-American dish. Which means, if you go to Italy, you will not find it. I first had this soup at Olive Garden and I loved it so much I searched high and low for a recipe, and I tweaked this enough to make it as close to the original as possible. Sometimes if I am pressed for time or feel lazy I do this in my Instant Pot and it comes pretty good too! Enjoy! —————————————————————-Read More →
  Monday 11th of June 2018 12:00:23 PM
• Thank You Emma!!
  When Emanuelle McIntosh  asked me to be the first of Inspirational stories to share on her YouTube channel I couldn’t say YES fast enough. Nicky was on board even before I asked him if it was OK that I said yes! Nicky and I are of one mind, and when we’re not he’s sure to tell me, LOL. My husband sometimes makes fun of us, as I know what Nicky needs before he even says what he needs. He’s a partRead More →
  Thursday 7th of June 2018 01:11:38 PM

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