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Silvias Kingdom

Silvias Kingdom Blog Details

Silvias Kingdom
I'm Blogging From: United States
Member Since: May 2014
Ranked: #5 in Special Needs Blogs #162 overall

Silvias Kingdom

Subtitled My Life with my Butterfly is my blog about my life with my special need child, born with Recessive Dystrophic Epidermolysis Bullosa. My first baby was stillborn, followed by a miscarriage, Nicky was my third pregnancy. He lives in pain every day. I was also lucky to have a healthy child after him, and I never, ever, take him for granted.

Recent News

  • Speaking About Stillbirth Shouldn’t be a Taboo
    October is Pregnancy and Infant Loss Awareness Month, yet stillbirth is still one of the last taboos. The Dictionary defines “stillbirth” as the birth of an infant that has died in the womb (strictly, after having survived through at least the first 28 weeks of pregnancy, earlier instances being regarded as abortion or miscarriage). Somehow, at large, stillbirth is still not considered as the loss of a child. To anyone who has not had personal experience, it can be all tooRead More →
    Tuesday 16th of October 2018 10:53:23 AM
  • Nicky’s Life Part 68
    September 2014 We had quite an encounter with Orlando Bloom at the ROCK4EB Fundraiser in Malibu. We had a 10 minute chat.. He rubbed my shoulder and told me I was a brave woman. Mind Blown!! Then he took a photo with Nicky. A short video of the encounter here: https://www.facebook.com/nick.zahorcak/videos/844285872260202/ More in the book –> http://www.butterflychildamothersjourney.com  Read More →
    Wednesday 10th of October 2018 10:39:10 AM
  • My Greatest Fear
    “I no longer feel the need or want to keep living 😞😞 I don’t feel strong anymore…” That sentence, if ever uttered by Nicky, is my greatest fear. He has never said that, but he’s come close to it enough times to throw me in despair. It’s the type of emotional bleeding that occurs when a parent truly understands their child’s medical fragility. We know very well that the unexpected can and does happen, that our children are vulnerable. ItRead More →
    Wednesday 3rd of October 2018 11:49:04 AM
  • Blog Quotes
    When my son was born there were no research trials, no further treatment of any kind. No pills, medications or hopes to be had. No one can prepare you for having a rare child. It’s a lonely place to be. I am a special needs parent. I got this. When I feel grief wash over me, when I am tired of fighting, when I feel isolated or exhausted, I can almost hear another special need mom telling me “you gotRead More →
    Tuesday 25th of September 2018 10:23:28 AM

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