Top Mommy Blogs

Top Mommy, Daddy & Coupon Blogs
Silvias Kingdom

Silvias Kingdom Blog Details

Silvias Kingdom
I'm Blogging From: United States
Member Since: May 2014
Ranked: #9 in Special Needs Blogs #272 overall

Silvias Kingdom

Subtitled My Life with my Butterfly is my blog about my life with my special need child, born with Recessive Dystrophic Epidermolysis Bullosa. My first baby was stillborn, followed by a miscarriage, Nicky was my third pregnancy. He lives in pain every day. I was also lucky to have a healthy child after him, and I never, ever, take him for granted.

Recent News

  • The Hard Work of Being Hopeful
    Society as a whole is filled with nice people. I met a ton of these kind people, whose heart is filled with kindness and generosity. But I don’t live in a bubble. I know some people are cruel. I know there is hate in this world. I know there is racism, bigotry, prejudice, misogyny, homophobia and discrimination. And while I encountered this cruelty in my life before my children were born-and stillborn, I just didn’t know how real it was until I became a special-needs mom. I am a little weary taking Nicky anywhere with me-a simple trip to Target can be filled with long stares, ugly looks and whispers. It’s unconscionable, but that’s how it is. This isRead More
    Tuesday 21st of November 2017 12:10:10 PM
  • Nicky’s Life Part 58
    January 2008 – Nicky showing his flexibility! This is one of the few things he can do with his body. He may not be able to walk or move much, so it’s always fun for me to see this fun/crazy side of him. In this picture Nicky was 12 and he hasn’t really changed much at all, he truly looks the same!!! That smile and the ability to not think about his condition and concentrate on doing what he can do is something I truly admire about him. He does not dwell or despair on the ugliness of his EB. He loves his routine and does what he can do instead. I don’t know if there will everRead More
    Thursday 16th of November 2017 11:11:36 AM
  • Help Nicky raise EB Awareness!
    Nicky was born on November 25th, 1996 and was diagnosed with Recessive Dystrophic Epidermolysis Bullosa (RDEB). EB is a rare genetic skin disorder, his body does not produce a vital protein that glues the layers of his skin together, hence the slightest friction causes painful blisters and wounds. His body has to be covered with special wound products and bandages to allow his wounds to heal and protect his skin from further damage. There is no treatment or cure at this time. You can help Nicky and all the children like him by helping us raise awareness! Like and share this image today. Follow these links for more information: Debra of America EB Medical Research Foundation EB ResearchRead More
    Tuesday 14th of November 2017 10:41:22 AM
  • Gene Therapy for Epidermolysis Bullosa
    This was an important week for Epidermolysis Bullosa Awareness. An article about a boy in Germany that was treated with skin grafts from Dr. De Luca in Italy is making the rounds around the world. (Here’s the link for the CNN article). The original research article that was published on Wednesday (the link is here) explains how it was all done. It’s complicated stuff, but here’s a quote from the CNN article that explains how it works: To obtain the skin’s stem cells, the doctors took a small biopsy — only accounting for 1½ square inches — from an unaffected part of the boy’s skin. The stem cells were processed by De Luca in Italy. A healthy versionRead More
    Sunday 12th of November 2017 12:20:07 PM

Comments & Discussions



Blogger Profile

Daily Unique PVs Total PVs Unique In Total In Unique Out Total Out
Average 0.0 0.0 0.0 0.0 0.1 0.1
Today 0 0 0 0 0 0
Yesterday 0 0 0 0 0 0
November 22 0 0 0 0 0 0
November 21 0 0 0 0 0 0
November 20 0 0 0 0 0 0
November 19 0 0 0 0 0 0
November 18 0 0 0 0 0 0
November 17 0 0 0 0 0 0
November 16 0 0 0 0 1 1
November 15 0 0 0 0 0 0
Highest 0 0 1 1 4 4
Weekly Unique PVs Total PVs Unique In Total In Unique Out Total Out
Average 0.0 0.0 0.0 0.0 1.1 1.1
This Week 0 0 0 0 0 0
Last Week 0 0 0 0 2 2
Week 45 0 0 0 0 1 1
Week 44 0 0 0 0 0 0
Week 43 0 0 0 0 0 0
Week 42 0 0 0 0 1 1
Week 41 0 0 0 0 2 2
Week 40 0 0 0 0 1 1
Week 39 0 0 0 0 2 2
Week 38 0 0 0 0 2 2
Highest 0 0 2 2 11 12
Monthly Unique PVs Total PVs Unique In Total In Unique Out Total Out
Average 0.0 0.0 0.0 0.0 6.0 6.2
This Month 0 0 0 0 3 3
Last Month 0 0 0 0 5 5
September 17 0 0 0 0 6 6
August 17 0 0 0 0 4 4
July 17 0 0 0 0 5 5
June 17 0 0 0 0 6 6
May 17 0 0 0 0 3 3
April 17 0 0 0 0 8 8
March 17 0 0 0 0 10 10
February 17 0 0 0 0 10 12
Highest 0 0 2 2 25 27
Unique PVs Total PVs Unique In Total In Unique Out Total Out
Overall 0 0 10 10 248 264
Quick Infooo Unique PVs Total PVs
Days sincs last vote:30
Total unique in: 10 Out: 248
Monthly Average In: 0 Out: 3
0 0

    Ranking method

    Top Mommy Blogs Help

    TMB Forum Latest

    New Posts
    Re: Links to My Blog/
    I agree with all of the tips above! Being active with other bloggers will really help to build your network and get those backli...
    Re: Links to My Blog/
    wooooo great blogs. i like it . please share more blogs . https://www.wikipedia.org/
    Re: Looking for Guest Blo...
    Hello, I saw  your post for a guest blogger.  I write for families of children with special needs.  I am a holistic health coach...
    New Leap Movie DVD & Dinn...
    This holiday giveaway includes the following: four (4) free meal passes for your family to enjoy a meal at any of Ovation Brands...
    Re: Feature the Inspired ...
    Great! Thanks, Brittany!

    Add this! Grab this code:
    <div style="font-size:small"><a href="http://www.topmommyblogs.com/" target="_blank"><img border="0" src="http://www.topmommyblogs.com/images/stories/tmb_ssi_200.gif" alt="Popular Mommy Blogs" width="200" height="54"></a>
    <iframe  style="border: 0px;" 
    src="http://www.topmommyblogs.com/ssi.php?num=30" 
    height="250" width="200" 
    scrolling="no" id="tmb"></iframe>
    <br><a href="http://www.topmommyblogs.com/join/">Add Your Blog</a> | <a href="http://www.topmommyblogs.com">More Mom Blogs</a></div>

    visitors

    start here

    bloggers

    start here

    WE'RE SOCIAL

    Keep Up With TMB

    blog giveaways