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Silvias Kingdom

Silvias Kingdom Blog Details

Silvias Kingdom
I'm Blogging From: United States
Member Since: May 2014
Ranked: #12 in Special Needs Blogs #328 overall

Silvias Kingdom

Subtitled My Life with my Butterfly is my blog about my life with my special need child, born with Recessive Dystrophic Epidermolysis Bullosa. My first baby was stillborn, followed by a miscarriage, Nicky was my third pregnancy. He lives in pain every day. I was also lucky to have a healthy child after him, and I never, ever, take him for granted.

Recent News

  • Nicky’s in Charge
    The other night I was changing the bandages of Nicky’s lower back and to my dismay, in the attempt of healing the area, the opposite happened. It’s now worse than it’s ever been. The whole area is a BIG open wound. Ugh. It’s always a shock to me that I can even do this. Before …
    Tuesday 6th of June 2017 11:41:08 AM
  • Nicky’s Life Part 55
    August 1997 – Nicky here is 8.5 months old and with my help he can stand up. At this point his feet were not too bad so he could put some weight on it. Plus, he was not that heavy! This is key and one of the reasons why nowadays it’s painful for him to …
    Thursday 18th of May 2017 09:35:13 AM
  • Things Don’t Get Easier
    From my book “Butterfly Child“: “For a long time I told myself that things would get easier. It was going to be easier once he sat up, or when he was out of diapers, or when he turned 10, but I had been duped. The wounds were bigger, nastier, took longer to heal; the limbs …
    Monday 15th of May 2017 12:51:56 PM
  • Blog Quotes
    As mothers (and fathers!) we have children for many reasons, none of which include seeing our babies in pain for decades nor burying them. The death of a baby is a scarring event, make no mistake about it. The thing that haunts me the most is that it’s so final. There is no hope to …
    Thursday 11th of May 2017 11:01:17 AM

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