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Silvias Kingdom

Silvias Kingdom Blog Details

Silvias Kingdom
I'm Blogging From: United States
Member Since: May 2014
Ranked: #8 in Special Needs Blogs #193 overall

Silvias Kingdom

Subtitled My Life with my Butterfly is my blog about my life with my special need child, born with Recessive Dystrophic Epidermolysis Bullosa. My first baby was stillborn, followed by a miscarriage, Nicky was my third pregnancy. He lives in pain every day. I was also lucky to have a healthy child after him, and I never, ever, take him for granted.

Recent News

  • What I’m Into {June 2018 Edition}
    What I am watching When season 1 of 13 Reasons Why dropped on Netflix last year I wasn’t interested in watching it at all. Let’s face it, it has been a LONG time since I was in High School, and little by little, year after year, movies or shows that depict teenagers’ lives are less and less relevant nor interesting to me. Then on a talk show one of the actors that portrays a parent of these kids started explainingRead More →
    Wednesday 13th of June 2018 04:08:19 PM
  • Mental Fatigue
    Two years ago Nicky started a clinical trial at Stanford with a cream called “Zorblisa” that helped his wounds heal quite a bit. This is not a cure, of course, but getting wounds not only healed but healed WELL is always paramount to ensure optimal health. No wounds = no infections and no cancer, which are the deadly complications of RDEB.  For us, preventing wounds to begin with became a quest. While we cannot claim this as a miracle cream orRead More →
    Tuesday 12th of June 2018 01:51:52 PM
  • Zuppa Toscana
    This is also an Italian-American dish. Which means, if you go to Italy, you will not find it. I first had this soup at Olive Garden and I loved it so much I searched high and low for a recipe, and I tweaked this enough to make it as close to the original as possible. Sometimes if I am pressed for time or feel lazy I do this in my Instant Pot and it comes pretty good too! Enjoy! —————————————————————-Read More →
    Monday 11th of June 2018 12:00:23 PM
  • Thank You Emma!!
    When Emanuelle McIntosh  asked me to be the first of Inspirational stories to share on her YouTube channel I couldn’t say YES fast enough. Nicky was on board even before I asked him if it was OK that I said yes! Nicky and I are of one mind, and when we’re not he’s sure to tell me, LOL. My husband sometimes makes fun of us, as I know what Nicky needs before he even says what he needs. He’s a partRead More →
    Thursday 7th of June 2018 01:11:38 PM

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