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Silvias Kingdom

Silvias Kingdom Blog Details

Silvias Kingdom
I'm Blogging From: United States
Member Since: May 2014
Ranked: #7 in Special Needs Blogs #228 overall

Silvias Kingdom

Subtitled My Life with my Butterfly is my blog about my life with my special need child, born with Recessive Dystrophic Epidermolysis Bullosa. My first baby was stillborn, followed by a miscarriage, Nicky was my third pregnancy. He lives in pain every day. I was also lucky to have a healthy child after him, and I never, ever, take him for granted.

Recent News

  • Alex’s Anniversary
    It’s late February. It’s inevitable. Everything affects me more deeply. I find myself being more melancholy, my grief is more intense, disabling, confusing and all-consuming. My son Alex should be 23 years old in a few days. I didn’t just lose a baby these many years ago, I lost a lifetime of memories with someone that I loved before we ever met. Some of the hardest losses we experience as human beings are those involving children. They go against nature. Children aren’t supposed to die. In my world, however, they do. Oftentimes children with EB die before they’ve lived, like my Alex did. Yes, he had EB, but we did not know it at the time. In myRead More
    Monday 19th of February 2018 01:31:57 PM
  • Nicky’s Life Part 61
    August 2013 – Nicky right after he woke up from his hand surgery at CHLA with his dad. It always amazed me how strong he is. He wanted this surgery and it ended up to be really good for him in the long run as well. We use a splint to keep the thumb “out” at night and even after 3.5 years using that with the wrapping he lost very minimal web space. Of course his hands are far from normal looking, but he can use them, which it’s huge in my book. He truly cherishes his hands, so we’ll keep doing what we’re doing! More of Nicky’s story in the book… Thank you so much for yourRead More
    Friday 16th of February 2018 10:37:44 AM
  • The Truth of This Italian Immigrant
    I am often asked how I moved to the US, what happened that made me leave my country, if I fled, escaped or what. The truth is not so clear cut, not exactly that simple. I didn’t wake up one day and decided: “I am moving!”. It was a succession of events. Let it be known, however, that if I had had to face the laws that are in place today, I would most likely not had been able to become a citizen. Whether I would be one of those infamous “illegals” or if I had gone back to Italy, it’s something I don’t know, even after having married a citizen… or two. Just recently in fact, aRead More
    Wednesday 14th of February 2018 12:04:45 PM
  • 25 Facts about Me
    In this world full of alternative facts, here’s some real facts about me. I will do one about Nicky too sometime!!! 🙂 1. I lived in 2 countries and in 4 different states – Italy & USA -New Mexico, Texas, Arizona and California. I grew up in Italy, and my heart is still there. 2. Except for a one-year and a half period where I was a ‘divorced mom’, Nicky never had a babysitter again. Connor NEVER had a baby sitter. If they are not with mom, they are with dad or at school. I take great pride in that, and even when I went to school and work, I did it during the hours that they wereRead More
    Saturday 3rd of February 2018 11:10:03 AM

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